Book review :Me and my pain

A little while ago I was looking around a website that sold cheaper e-books. A friend had given me this tip. The website is called smashwords and indeed it has lower priced and even free e-books in many categories and e-book formats. While I was filling in the keywords that interrest me, I came across the following book.
"Me and my pain - the challenges of living with chronic pain" by Abbey Strauss. As it was only 2$ and it seemed pretty interresting I decided to download it and give it a try.

I must say those were 2$ well spend. This book really focusses on one of the challenges of living with pain. And that is the challenge of making people [especially doctors] believe in our pain. With so many of us you don't see on the outside that we are almost always in pain. And medical tests can't find a reason for the pain. How often have you heard "Maybe it is more a mental problem", seen in doctor's eyes that they don't really believe you. In this book is advocated for doctors and patients to be honest to each other and to believe in one another. Pain that is not understood and not acknowledged can drive people to suicide. Patients can feel they have tried anything and nobody understands what is going on.

The sections on addiction are really strong. A lot of pain patients are wronly labeled addicts because they take a lot of painkillers to get through the day. He explains very well that this is not the case. If the pain would go away so would the painkillers. 

I found the following section of the book very striking.

These are the rules a patient must

follow:

Pain patients can’t have personality

disorders; if they do then the pain is not quite as real.

Pain patients can’t be depressed over their

stations in life; if they weren’t as depressed, then the pain would

be less.

Pain patients can’t be angry at, or want

compensation from, those who wrongly injured them; if they do then

the pain is not as quite as real, or it is amplified just so they

can get a larger money settlement.

Pain patients can’t have insomnia; the reason

they can’t sleep is because they have not learned enough

self-hypnosis or haven’t accepted their condition.

Pain patients can’t have anxiety or phobic

disorders requiring certain medications; they aren’t allowed to

have more than one curse in life needing treatment.

Pain patients can’t have different or

individual medication tolerances; if they do not fit within the

normal dosing ranges, then they are addicts or placebo

responders.

Pain patients can’t have more pain than the

doctor allows; if they do then they are manipulative.

Pain patients can’t have good moods; they

have to be miserable and complaining all the time.

Pain patients have to always be sick; they

can’t have good days and bad days.

Pain patients can’t have a good day without

everyone thinking the patient is finally learning to live with the

pain, or that the pain is at last vanishing forever.

Pain patients can’t disappoint people by

having a bad day after a good day.

Pain patients can’t look good; if they look

good, then the pain can’t be so disabling or menacing.

Pain patients can’t respond to hope when they

get good news; their demeanor cannot improve or change because to

do so lessens the believability of the pain’s intensity, constancy,

intolerance, and presence.

Pain patients can’t be skeptical; they aren’t

allowed to question new or proposed treatment decisions based on

their real prior experiences as pain patients.

Pain patient’s can’t have other people steal

their medications; being victimized, even one time, by a theft is

too quickly considered as an indicator of the patient’s

irresponsibility, even for those who are generally very

responsible patients.

Pain patients have to be average; if they are

too smart then they are too ‘pushy’.

Pain patients can’t be normal like the rest

of us; why should they find it easier to deal with pain, or even

stop smoking cigarettes, than anyone else?

Pain patients can’t believe in alternative

life styles; if they do then they cannot be as trusted, or they

might be considered as odd or eccentric. Such eclecticism can be

initially spooky and uncomfortable for many who treat these

patients.

Pain patients can’t be diagnostic oddities;

if their illness can’t be labeled, then it’s too quickly re-painted

as psychosomatic.

Pain patients can’t be picky; they aren’t

allowed to want other than second string doctors.

Pain patients can’t take up too much of the

doctor’s time; if they do then they might become too erudite,

insistent, or burdensome, and this may frighten the doctor

away.

Pain patients can’t shop, cook and clean; if

they do then they are not in that much pain—but, by the way, who

will do these chores for them?

Pain patients have to like everyone the

insurance company sends to care for them; if they don’t like

everyone, then they are obviously non-cooperative and

thankless.

Pain patients have to be meek; if they

aren’t, then they don’t genuinely treasure all the good that others

are trying to do for them.

Pain patients can’t know their history better

than their records; they aren’t supposed to be upset when wrong or

incomplete data and inaccurate conclusions are put into their

medical records.

Pain patients can’t feel the double bind: “if

I tell him the other doctors were wrong then he’ll think I’m too

much of a smart ass, but if I don’t tell him how the other doctors

were wrong, then we may start with the wrong clinical impression

of me, which is why I am here in the first place, to have a doctor

get it right....”

Pain patients have to know magic; they are

expected to take the cash won in a lawsuit, wrap it around the

painful part of their bodies, and make the pain go away. They are

the only people for whom money can buy happiness or cure pain.

Pain patients have to get better; if they

don’t, then doctors may not continue to treat them for the parts of

the problem that don’t get better.

Pain patients have to ‘learn to get used to

it’; this must be done with the same enthusiasm, gusto and

savoir-faire of someone getting used to being poor.

Pain patients can’t answer ‘how are you?’

with ‘fine’; for to say ‘fine’ is thought to mean that they are

better.

Pain patients can’t choose to sacrifice; if

they ever do something one day because of the emotional joy of

doing it despite the pain penalty payable afterwards, then they

can’t obviously be in that much pain.

Pain patients have to perfect; I guess that

means they can’t be human.

I don't think the situation here in Europe when it comes to getting the right medication is as bad as it is in the US. But still I found this very striking.

All in all I thought the book was a bit too long and there was a bit of repetition and the examples of people in trouble about getting the right medication went on and on. But in the end it was a very usefull book. It strongly advocates the rights of pain patients to be believed and to be helped! Every person has the right to the best life they can lead. For me that means pain patients have the right to medication they truly need and help from therapists to help them get the most out of life under difficult circumstances.